Terran moved to Seattle Children’s Hospital (in style!) on Thursday. We hung out at Swedish all day until his AMR arrived in the evening. Boy was he hooked up! The transport team was amazing (driver, parametric, and respiratory). Terran’s nurse and I made sure he was comfortable and happy before they loaded him into an …
Turning a corner… at full speed. That’s what it felt like when I got the news this morning that Terran would be transferring to Seattle Children’s Hospital tomorrow. Yesterday we were still waiting on a date and everyone thought it would be at least a week, maybe two. Terran just got his replogle taken out …
Today is Terran’s due date! He’s full term! Seems like an appropriate day for some good news. The doctor that did Terran’s surgery got back from vacation today (they practice as a trio- all are great, but I particularly like her). She told me that Terran has technically passed her surgical recovery markers: 1) the contrast …
Sooooo there will be setbacks. I should expect that. Terran’s replogle went back in today. I felt my first mama-infuriation this morning when I saw it because we weren’t warned this was a possibility. It’s so irritating to Terran and we were so excited to be past it that it was a serious shock to see it …
We didn’t start the feeding program today, but there were some wins. First- why we’re waiting to start the feeding program: the surgeon was happy to see the contrast move all the way through. However, he was less excited to see contrast remain in the stomach for so long. What that shows is a) the plumbing …
Amazing item #1: Seeing Terran without a replogle was even better than I expected. The care team removed it before I got in and said he was visibly relieved and went right to sleep. It was important for a while- he would get irritated when the bile would build up and needed a nurse to …
Terran got his replogle out today!! And he did a contrast study!! Big moves!!!! Read More »
The doctors originally set expectations of a month+ until Terran is ready to start the feeding program, but he’s making moves faster than anyone predicted! Over the past couple days his replogle (the tube that’s been sucking up his stomach contents- primarily backed up bile) has cleared from a dark green to a light yellow …
Terran slept a straight 7 hours overnight! Made possible by TPN (Total Parenteral Nutrition). Terran doesn’t need to be woken up every 2-4 hours to feed like an average newborn because he’s getting his nutrition through IV 24/7. +1 for the silver linings list. We cuddled swaddle style and skin to skin. In between, we …
Terran was smirking when I got in this morning. He was just laying there, sleeping, and smirking. This was the first time I’ve legitimately seen him smile. We just snuggled and sang and smiled at each other all day long. His personality is shines a little brighter every day. I’m sorry for those of you …
I brought in cookies for the nurses to celebrate. It’s hard to describe how amazing they are. Each one has a slightly different way of doing things, and we learn something new from each one. Of course it’d be better to not have to be in the NICU at all, but while we’re here, might …