Thanksgiving was going so well! We completed a solid dressing change early in the day, we were able to cook both our dinner contributions in time, and Walker’s outdoor waterproofing at Nana’s was so good we stayed outside all dinner long. Family members got to meet Terran for the first time and he was calm …
We accidentally crossed the line into dehydration.. just barely, but his electrolyte levels did drop slightly and so we immediately changed our strategy with the g tube. It was always going to be a trial and error thing.. and we may have gotten over excited with the whole breastfeeding thing.. but we have it under …
So this is what it’s like to have a happy baby!! Walker and I nearly cried the first time Terran looked up after a true breastfeeding – smiling from ear to ear! We’re in an entirely new chapter now. But I’m getting ahead of myself! Rewind to last week… Oct 27 – Terran gets an …
Some very exciting news – Terran’s G-tube surgery date was moved up from Dec 2 to Oct 28!! It’s a Halloween miracle! 🎃 👻 We’ll stay at the hospital one night, learn how to care for and operate the G-tube, wait a couple days for healing, and then start using it. Then we’ll be free …
Terran’s massive vomits continue and his bowel movements are unpredictable… we got to a point where he was pooping once a day for a week, but now he hasn’t had anything material for a couple days. Even still, his bottom has never been as “active” as it should – kids like Terran are typically on …
We had our first outpatient visit at Seattle Children’s this past week. We discussed his daily projectile vomiting, weekly “real” poops surrounded by daily “smears”, childcare and immunization schedule advice, and growth. Turns out Terran is the youngest current member of the LIFT group and one of the youngest ever as most babies are 8-9 …
We were released from the hospital around 7pm Tuesday, after our first TPN change on Terran to his home machines. We had been running through the steps in our heads all day, which made us extra prepared when the big moment finally came. The home care nurses watched us + came to watch the first …
I hope I’m not jinxing our discharge by writing this… I’m just so excited! We get to go home TOMORROW! Terran will have been in the hospital for 6 WEEKS. He’s never known fresh air, Moxie dog, our home… really anything outside of a hospital setting. I brought in sunflowers the other day and was …
Terran is still at 1 ml feeds but that’s ok. He’s taking them well when kept upright and burped/held for at least 45 minutes afterwards. I’ll hold that boy all day if it means he gets breastmilk. An occupational therapist came to see us and made Terran a “wedge” to sleep on. It’s a way …
Terran’s Broviac central line surgery was a success (hooray!). The only hiccup was it’s now accessed via the subclavian vein instead of the jugular. Achieves the same result. The surgeon was having trouble threading the catheter through the jugular but an ultrasound afterwards confirmed his veins are all a-ok so no worries about using it …