Many things have happened since the last post two months ago (wow – sorry!). The most important of which: Terran turned ONE YEAR OLD!! It’s not an accurate time measurement. The first year is a time bend. He’s been here one month and he’s been here all my life at the same time.The other things …
In recent conversations, I’ve been reminded that you don’t live the Terran Life daily (it’s OK, your life is beautiful in other ways 😉 and a quick summary and some key definitions might be helpful: Overview:– Terran’s condition: In a bucket called “short gut”, Terran is missing ~80% of his intestines including everything from the …
A quick update on where we’re at: After pulling the (infected) central line and waiting a couple days, Terran has finally cleared his blood infection. We’re scheduled for surgery tomorrow and home on Wed. We’re so relieved to see light at the end of the tunnel! There are 1,000 gruesome details I’ll share once we’re …
We loaded Terran in the car Monday morning to head for his scheduled clinic visit. He seemed a little extra tired, but he had just been napping so that wasn’t anything alarming. By the time we were in the clinic room, we knew something was up. We asked the nurse to recheck his temperature a …
There have been some hiccups over the past few weeks, but overall we’re in a good place. With Terran laughing and smiling as much as he does these days, it’s hard to be anything but optimistic! We just have to remember it’s a long road we’re on. Last time I wrote we were gearing up …
Apologies for such a long time since the last post – but ultimately no news is good news around here! There have been ups & downs, but mostly we are heading in a positive direction. Terran is showing his third tooth, starting to eat solids, drinks water from a cup (with mama’s help), is riding …
Terran got to keep his central line!! The doc was on the fence about waiting another day for a negative blood culture because it had taken so long to get him to a “therapeutic” antibiotic level (the point at which the dosage is high enough to kill the bacteria). Since it wouldn’t harm him to …
Terran got his first fever Wed night. Our thermometers (forehead and rectal) were bouncing all over the place giving us readings from 98 to 101, with no consistency. We settled on 100.8 as his most accurate reading. After calling the hospital twice, we were assured that the threshold was 101 to bring him in and …
Quick update on Terran’s recent central line surgery: Everything went well and we’re all home now. The surgeon was unable to use the same path (subclavian vein) but successfully inserted a line through the jugular vein. That was the path the original surgeon tried to use, so really his current line is in a more …
I planned to write a post about how much we enjoyed time with family over Christmas. Terran’s first Christmas included Nana dressing up as Santa, snowfall on Christmas Eve that stayed through the New Year, and a week in Bellingham with Grammy and Grampy. So many friends and family members doted on Terran (and Mama …